I cant wait to see the look on Carson's face on Christmas morning when he sees this!!!!
Monday, November 28, 2011
LOOK what we bought Carson for Christmas!!!!
I cant wait to see the look on Carson's face on Christmas morning when he sees this!!!!
Wednesday, November 23, 2011
2 steps forward, 1 step back
Carson has been doing great but the past few days he has been back to his unhappiness. I know he has to be beyond frustrated constantly. I cant imagine not being able to communicate. I try to put myself in his shoes and remind myself how difficult it has to be for him. It breaks my heart when I know he wants to say something so bad but he just cant find the words. Other times he will think we dont understand or that we dont know what he wants when we do know but its not something we can do at the moment. For instance, when its cold or rainy outside and he wants to go out and play. He will grab my hand and bring me to the back door and look up at me with those puppy dog eyes of his and I tell him buddy I know what you want but we cant go outside right now. He doesnt understand that I understand him so he gets very frustrated and will start to cry and have a meltdown. Its so very hard watching this because I just want to help him understand. I have been having dreams lately that he has just started talking in sentences over night. I dont expect that to happen but when I wake up I am so sad it was just a dream. I want that to be true so very much. Even if he could just learn to say simple things like 'want juice' or 'watch nemo' it would make things so much easier. I worry everyday that he will never be able to speak and that he will never be able to communicate with us. This is my biggest fear and I pray everyday that this doesnt happen. I have to remain positive and have hope that one day he will be able to talk and until that day I have to be patient and know that this is much harder on him than it is on any of us. I have to believe that one day things will be easier and that Carson will be happy.
Saturday, November 19, 2011
2 more goals reached!
I am so happy and excited to write this post!!! Carson has reached 2 more of his goals at school and these two are ones that he has been struggling with for awhile now. Part of his treatment is to learn to do daily living skills and to prepare him for potty training. He mastered "pull down" and "pull up" pants!!! Its funny because many parents without an autistic child would think this wasnt something that exciting but for us and for Carson its HUGE!!! He is really starting to comprehend and understand what we say to him. Now when its time for diaper changes we say to him "pull down pants" and he does it!!! Its amazing to have that connection and to know that the words we say are finally starting to be absorbed by his brain! The next daily living skill he is working on is taking his shoes off when asked. This one may take awhile. I am just so proud of Carson!!! He is doing better than I ever expected :)
Wednesday, November 16, 2011
11/16 UPDATE
Carson is doing wonderful! I couldnt be happier with his progress!!! He is doing great at school and at home. He is eating a variety of foods again instead of just one thing all of the time. He is loving green beans and peas again and some fruit. He is eating chicken nuggets and fish sticks, gluten free of course. His eye contact has been amazing. Tonight I was sitting on the floor with him and he jumped in my lap and grabbed my face and looked straight in my eyes and gave me a kiss!!!!!! It was a very sweet moment! He is still struggling with the long hours of his school day and he is so exhausted by the end of the day. No nap is really difficult for him and I feel so bad for him because he is just so tired all of the time. He was wanting to go to bed tonight at 5:30!!! The time change makes it worse :/ I am so excited everyday to see what he is going to do and to see what he will accomplish at school. I am so proud of him!!!
Thursday, November 3, 2011
Amazing!
Carson is slowly starting to emerge from his shell!!! The past few days have been so amazing. I really think the gluten free diet he is on has made a HUGE difference! He has been so connected to us and engaged with the world! Its amazing!!! His eye contact has been awesome and he is trying so hard to say some words. Tonight when I was giving him a bath we were playing peek-a-boo like we always do and I said Boo like I always do and he repeated it!!!!! I burst into tears! That is amazing and a huge accomplishment for him!!!! When I dropped him off for school the other day he said bye and every morning on the way to school it sounds like he is trying to say school. I am so amazed and so proud of him!!!!! I think everything we are doing is starting to pay off and he is starting to emerge from his shell FINALLY!!!!
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