Wednesday, November 23, 2011

2 steps forward, 1 step back

Carson has been doing great but the past few days he has been back to his unhappiness. I know he has to be beyond frustrated constantly. I cant imagine not being able to communicate. I try to put myself in his shoes and remind myself how difficult it has to be for him. It breaks my heart when I know he wants to say something so bad but he just cant find the words. Other times he will think we dont understand or that we dont know what he wants when we do know but its not something we can do at the moment. For instance, when its cold or rainy outside and he wants to go out and play. He will grab my hand and bring me to the back door and look up at me with those puppy dog eyes of his and I tell him buddy I know what you want but we cant go outside right now. He doesnt understand that I understand him so he gets very frustrated and will start to cry and have a meltdown. Its so very hard watching this because I just want to help him understand. I have been having dreams lately that he has just started talking in sentences over night. I dont expect that to happen but when I wake up I am so sad it was just a dream. I want that to be true so very much. Even if he could just learn to say simple things like 'want juice' or 'watch nemo' it would make things so much easier. I worry everyday that he will never be able to speak and that he will never be able to communicate with us. This is my biggest fear and I pray everyday that this doesnt happen. I have to remain positive and have hope that one day he will be able to talk and until that day I have to be patient and know that this is much harder on him than it is on any of us. I have to believe that one day things will be easier and that Carson will be happy.

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