Improvements

Carson has been doing well and is having fewer meltdowns. We increased his melatonin and it seems to be helping sometimes. He still wakes up several times a night a few nights a week. His grandmother made him a weighted blanket so we will try that and see if it helps. He has been having some pretty bad meltdowns that seem to come on suddenly without warning. We still haven't figured out the cause of them and perhaps we never will. It's heartbreaking to see him so upset and there is very little we can do to comfort him. He has seemed more content in the afternoons and evenings after school and has been playing so well. He likes to find a corner to play in and once he does he is so happy with his animal toys. I love to see this! He has started to become interested in books again. He likes books with pictures of animals. He especially loves zebras, giraffes and lions. They are his three favorites!!!

 

 

Sleepless Nights

We started giving Carson melatonin at night to help him sleep. It's so hard for him to settle down and fall asleep. He used to be in bed for hours before he would finally fall asleep. The melatonin has made a huge difference! However, he wakes up almost every night at 3am and he is wide awake. He is hyper and so so so loud!!! He doesn't cry but just yells so loudly. His sisters room is just across the hall and he sometimes wakes her up. I go upstairs to his room and attempt to lay with him. I will tell him it's still night time and he needs to lay down and go back to sleep. I tell him to be quiet and close his eyes. He looks at me blankly and gets louder. He is so unreachable. He doesn't comprehend anything I say. I eventually leave his room and he stands at his open door yelling louder and louder. At this point every one in the house is awake. This is becoming an every night occurrence. I don't know what to do or how to get through to him. I don't know how to parent a child that doesn't understand anything I say to him. Things were going so well for awhile and now it's like we are back to the beginning. All I can do is pray for strength and patience and hope that this too shall pass...

 

Finally...

Carson has finally settled down and has become calmer again. Being out of his routine is getting more difficult for him. Now that he is back to school he is much happier and more content :)

 

 

This too shall pass...

Carson had an awful morning again. He woke up really crabby and when it was time for breakfast he had a really bad meltdown. This has been a pattern for several days. Today he almost pushed our flat screen tv off the entertainment center. We don't know what's going on or what is making him so upset. I am missing his smile! I hope this ends soon...

 

 

New Year

It's a new year and maybe I can make it a resolution to update regularly again. Things have been going well. Carson is doing good and making so many new sounds. We are remaining hopeful that he will one day become verbal. He is now in Speech Therapy again and on the waiting list for OT. Right now he is on Christmas break from school and he has had a very difficult time with change of routine. He has had several meltdowns and they are lasting longer and longer. Nothing calms him down or makes him happy. We can't take him anywhere because when we do he had awful fits. This is all new to us because in the past he has always been great in public places. We just wish we could get inside his head and know what's upsetting him so much. He goes back to school in 4 days and hopefully then things will get better. Until then we have to find ways to survive and get through each day as peacefully as possible.